Dedication:
I dedicate this article to a truly inspiring child advocate and professor, the late Irwin Hyman, Ed.D., who fostered my education throughout my time at Temple University.
He was a man of brilliance, boundless energy, and intense devotion to the well-being of children. He had a vision of change and helped his students to become part of it.
The bureaucracy has won. The kids have lost. The game is over. Turn off the lights. Lock the doors.
It has been a brutal and grueling road to this conclusion, but I am certain of it. The kids are always going to lose. Always. Over the course of twenty-three years and more than 1,200 assessments, most ending up in an individualized education plan, mediation or hearing, Iâve watched, first-hand, the unapologetically incompetent special education system âat work.â Not only is it incompetent, but thieving and vicious.
Iâve worked with kids from many school districts, states, and yes, even countries, and the story never, ever changes. Never. Of course, Iâm painting every district with the same brush. Does your district have another story?
While I recognize that many people are working diligently and ethically to help these children, they do so at their own peril. A school psychologist dared to agree with my assessment and she was fired. Good for her. She went into private practice. She couldnât take it anymore, either. Such was my path.
Multiple times administrators told me what I could and could not say. Administrators! They had no credentials or training to influence my work, but for the sake of the bureaucracy, they tried to control me and the rest of us. Intimidation, threats of âwrite upsâ and transfers, lunch duty â whatever it took to wield the bat of authority.
Bureaucracies really are living, breathing beings. And they act like it. All living things seek to stay alive and perpetuate themselves.
Once I realized how the âgame was played,â I walked parents to their cars after IEP meetings and gave each of them packets of the information I could not give them in front of the team. Bless them. None of them ever ratted me out. Finally, I could not reconcile the immorality and lack of ethics, so I quit. I started a private practice where I could gather as much data as I needed to make appropriate recommendations based on that data. My attitude was â and is â âGet out of my way. This kid needs help.â
I thought that would be enough, but it isnât. The deck is stacked against the families.
First, school districts use taxpayer dollars to fight you.
Thatâs right. The money you pay in taxes is used against you, while you are struggling to sell property or get a second or third job to afford an attorney. Itâs a war of attrition. They can and will outspend you. They can and will wear you down to protect the âmother shipâ of the bureaucracy.
Consider the Solana School District in San Diego that spent $1,000,000 in a 7-year battle against parents of a 4-year-old with autism.[1] All these parents wanted was for their child to be included in a general education setting. The district was trying to avoid paying $6,100 in tuition for a private school. Go ahead. Read it again. Thatâs where your tax dollars are going.
Understand that some punk who just robbed a 7-11 and waived a .45 in the face of a terrified clerk gets an attorney to protect his rights and yes, yet again, you foot the bill. All in the name of justice.
Who helps parents who assert their childâs rights to a Free and Appropriate Education? If the family had limited resources, the best I could do was refer them to a competent advocate when there was no attorney who worked on contingency.
When the family was from another state or region, I referred them to the Council of Parent Attorneys and Advocates (COPAA). I gave them resources such as Pete Wrightâs website.
After all of the work we did, if I couldnât find resources they could afford, what would be the value of that work? I used a metaphor to bring home the truth. Youâre having chest pains. You have a history of cardiac problems. You go to the ER where the doctor tells you that youâre having a heart attack and walks away. âGood luck,â she says. And you stand there, perplexed. âArenât you supposed to help me?â SilenceâŚ
Itâs the same question I ask myself time after time. Arenât they supposed to be helping? Oh sure, on the surface, it looks that way because there is just so much paper generated on behalf of your child and everyone looks so busy. Yet, when you challenge them because your child is not making progress, their attitude changes dramatically. Itâs the âHow dare you question our authorityâ stance. And then, when you throw in an âoutsiderâ like me, itâs on.
Second, the assessments are, in my experience, useless.
Itâs not that the school psychologists donât want to or donât know how to do more, itâs that theyâre allowed to do only what they are told and, unfortunately, donât have the proper tools. They are frustrated beyond belief, overworked beyond all reason, and operate from a position that is intolerable. They know what is going on with the students, but canât help. Theyâre put in a position where they must âidentify with the aggressorâ (a.k.a., administration).
Stockholm syndrome might be more familiar to you than the phrase âidentify with the aggressor.â If you comply with those who can hurt you, youâre less likely to get hurt. Remember Patty Hearst? This womanâs behavior brought the concept of âidentification with the aggressorâ to our attention. To the public, it made sense and helped us understand the reasons that abused women didnât report or testify against their abusers. It explained the alignment with the hostage-taker.
Iâve reviewed several thousand assessments conducted by school district personnel from all over the United States. Hereâs what Iâve seen:
Using outdated tests and outdated scoring software. This likely means your child is being compared to kids who were in school long before your child was born. Your kids are not being compared to those with whom theyâll be competing for a chair in college or a job.
Global scores are reported. Those with learning disabilities frequently have highly inconsistent performances both on tests and in the classroom setting. Frustrating for everyone. One day they can do it, the next, they canât. Why?
If global scores are reported, you have no idea if that score is correct because you donât have access to the scores that make up that overall score. For example, the overall score is average and that makes you a happy Momma. But, what you donât know is that one score is really, really high and the important scores are really, really low and it comes out average. What you donât know can hurt your child because you then go on to operate under inaccurate beliefs about your childâs reading ability.
 Lies by omission. Lies by commission are outright lies and lies by omission are distortions of the truth because not all of the information was offered.
A limited kind and amount of information is shared. I can usually tell when students are doing poorly because age and grade equivalences are not provided (if they are available from the test maker). Age and grade equivalences do not provide the most reliable picture of a studentâs performance; standard scores are more reliable. However, age and grade equivalences are more meaningful to parents. What do parents know about a score of eighty-five or even a percentile rank of fifteen? But, if they see that their ninth grader is reading at a fourth grade level, the situation heats up.
There is little-to-no interpretation. When districts conduct assessments and write reports, there is little meaningful interpretation. That means that the results are rarely âconnectedâ to the classroom performance in a way that makes sense to parents. Their reports are a sterile listing of standard scores and percentile ranks and a general, qualitative description (average, above average, below average) of the studentâs performance. Parents rarely understand the issues their children are experiencing in the classroom.
In my practice, I write my reports for parents. Theyâre a subtest-by-subtest analysis with a great many observations that add to the understanding of âwhatâ their child looked like when they were working. I want them to see their child through my eyes when working through tasks. They are frequently several hundred pages long, especially since I include all previous assessments, report cards, standardized testing, IEPs, addendum â all of it.
Discrepancies are not explained. How is it the case that studentâs achievement scores are higher than their intelligence/learning potential scores? How can you spend what you donât have? Whereas higher achievement scores can be the result of effective intervention, their classroom performance does not reflect their reading, math, or written language achievement.
The school environment is not conducive to valid results. So, when the bell rings and everyoneâs going out to play, how can a kid, who is being tested, concentrate? If a student is worried about missing history because sheâs already behind or her latest crush sits next to her in that class, how can testing compete with those feelings and thoughts? It canât, plain and simple. Unlike the school setting, my environment is controllable. Because I test kids on the weekends, I can meet when they want to meet. There are no phones ringing, no herds of kids moving through the halls, no loud voices, no interruptions.
Thereâs little-to-no opportunity to establish rapport. I was a school psychologist. I knew that I had about ten minutes to establish some type of non-threatening relationship with a child before I asked them to work. This time limit was not particularly conducive to successful results.
In private practice, I could spend as much time as I wanted chatting and getting to know kids, making them hot chocolate or playing games when they were anxious.
 They were in charge of the environment. If they needed to stand, they stood. If they needed to reach out to someone for support, they did. For complex assessments and kids who have been seriously wounded by their educational experiences, sometimes it took twenty-five sessions. Sessions lasted no more than ninety minutes because kids just couldnât maintain effective attention and motivation for longer, as the research shows. Some of my kids could manage only twenty minutes due to attentional or emotional/behavioral challenges.
Districts really do base their conclusions on one test. Despite protests to the contrary, it is my professional opinion that districts base their conclusions on one test or one test plus a subtest of another measure. This is not âbest practice.â
School districts consistently fail to identify all areas of suspected disability. They donât have the tests to measure what they suspect. Psychologists donât have the tools they need to explore suspicions developed during their assessments. Many school psychologists have training that is focused only on the types of assessments that are conducted in schools and are not educated in the wide array of disabilities that theyâll encounter. When I sit in an IEP meeting and ask the psychologists about metacognitive and metamemory strategies that the student used, I get blank stares.
Short/brief forms of tests are administered. Only portions of tests are administered to achieve the desired scores. The shorter the test, the less reliable it is. Test reliability means that the test will yield the same results over and over. Consider the Wechsler Intelligence Scale for Children-5th Edition. It is necessary to administer only seven of the sixteen subtests in order to achieve the Full Scale IQ. The Full Scale IQ seems to be the only information that school districts find meaningful. In my opinion, a tremendous amount of critical information is lost if the remaining nine subtests are omitted. Test publishing houses need to stop being complicit in the inadequacies of school districts by making it easier to conduct a cursory evaluation.
School districts’ assessments are inadequate. School districts conduct what I call âeligibilityâ assessments, and we private clinicians conduct âdiagnosticâ assessments. In an âeligibilityâ assessment, only enough data is gathered to determine if your child is eligible for a program. Usually, âfoundationalâ skills are measured and there is little-to-no âfunctional focus.â
Itâs one thing to have solid sight word vocabulary, but that skill, in no way, is guaranteed to manifest into reading comprehension.
 Many of my tests are âfunctionalâ in nature. Not only do I measure sight word, word attack and word knowledge, but I measure how quickly a student can read, retain, understand, and answer comprehension questions. Why have basic skills if you canât make them functional?
 If youâre the most talented pianist known to mankind and never play, then, what is the value of your gift? Functional skills. Skills kids can use to succeed in the classroom. Thatâs where the action is.
 Itâs my experience that school districts across the country are nearly at a loss when it comes to evaluating autism and emotional distress. They have cursory training and experience in evaluating these aspects of the human experience.
For your reference, my assessment plan for elementary students with learning disabilities is offered at the end of this article.
Third, the Individualized Education Plan meeting does not generate a blueprint for learning.
Why is that? Well, the school psychologist has limited information, the team is required to write goals at grade level, and the whole plan is, in no way, individualized. It canât be because education isnât individualized.
The process is destined for failure. Everyone might be working hard with the best of intentions, but they are shoveling sand against the tide. Have you heard that definition of insanity that says you do the same thing over and over and expect a different result? Thatâs where we are. We just look busy, thatâs it. We got here because we just wonât open our eyes and see that weâre failing and weâll keep on failing becauseâŚ
Itâs an US versus THEM mentality. School districts put up huge walls. Unless they are forced to, they donât call on other professionals in the community for help. Why? Because theyâll have to pay for the services.
When I was able to convince Nancy Bell of Lindamood-Bell Learning Processes to put a clinic in our community, the next time the local newspaper came out, there was the superintendent proudly announcing, âIf Dr. McCulloch thinks our school district is paying for these services, sheâs wrong.â Well, sixteen years later, theyâve written plenty of checks to parents to reimburse them for Lindamood-Bell services, but they can still contend theyâve never paid Lindamood-Bell. Seriously? Yeah, letâs just play with these kidsâ lives for the sake of the bureaucracy.
 Districts do their best to minimize the extensive results I provide. âNo, no, we canât look at that!â They oftentimes completely ignore my results. What is a parent to think?
 One interesting dynamic is how they frequently reference âthe teamâ as if it is a groupthink. Well, it is. But, the âteamâ seems to be defined as the people who work for the school and since there are usually more on their side of the table than on the parentsâ side of the table, Iâve asked parents to bring grandparents, aunts and uncles, pastors, anybody who can fill the seats. Of course, you have to give the district twenty-four-hour notice as to who is coming. It sure does shake things up!
They donât ask us. I can practically guarantee that if a school district called on any of my colleagues and asked for our help, we would be right there, doing everything we can to make the situation come out right for the kid. The problem here is that our focus is the kid and not perpetuating the bureaucracy. We are ethically bound to consider the best interests of our clients at all times. We have no allegiances to bureaucracy.
Weâre not taking into account a kidâs developmental history. A long and difficult labor and delivery can lead to ADHD, autism and language processing disorders. If the kid was colicky and didnât achieve independent sleep within the expected time frame, they might end up being diagnosed with ADHD. If they were slow to achieve language milestones or had multiple ear infections, theyâre vulnerable to language disorders.
Once a kid qualifies for language services, they need to be tracked. Iâm talking about language development, not speech problems such as articulation disorders. Just because a kid has achieved their goals does not mean that language disorders are gone. They will absolutely reappear. Trust me. Iâve seen it over and over. Surprise! Qualify for language processing deficits in third grade, and dismissed in fourth grade? By sixth grade, youâre drowning. Your language development progresses slowly, but the pace of the curriculum is running away from you.
We donât understand that the more subtle aspects of learning can make or break a kid. Processing speed matters. Ever see the âI Love Lucyâ episode where she and Ethel get a job at the candy factory? Their job was to wrap each piece as it moved along a conveyor belt. Theyâre toddling along, having fun, doing their job. Along comes their supervisor, sees, that they âgot it downâ and speeds up the conveyor. Lucy and Ethel couldnât keep up and started stuffing candy into their hats, bras and pockets.
If a kid has a sluggish cognitive tempo, thereâs not a lot to be done about it. Kids with slow processing speed simply cannot keep up. They canât keep up with the pace of classroom instruction, the homework assignments and tests. Itâs tremendous stress on them.
 A Ford just canât keep up with a Ferrari. These kids will always have a large âfix and finish file.â
Learn about the massive impact of Attention-Deficit/Hyperactivity Disorder. Itâs not just about paying attention. The âdownstreamâ effects of ADHD are memory and speed of processing along with other executive functioning skills. Evaluate these areas to determine if they are hiding underneath the ADHD.
Learn about the widespread consequences of being on the autistic spectrum. Itâs not just about social development. Itâs about tolerating the environment from a sensory standpoint. Itâs about struggling to develop higher order thinking skills. How many school psychologists know the role of mirror neurons in the daily functioning of students on the spectrum?
Weâre not being realistic about what we can actually accomplish. Is it realistic to think that when a ninth grader is reading at a fourth grade level that a classroom support system can actually remediate that student? No, it isnât. We just canât give kids with disabilities the attention, the time, or the expertise they need to overcome their challenges.
Itâs the budget or the kid. And, the winner is, the budget! Itâs that basic.
We donât consider the long-term consequences of a child who does not learn. Youâre foolish if you think that you are insulated from the damage wreaked by a kid who never learned how to read.
Let me paint a picture for you. I testified in a fair hearing of a kid who was massively dyslexic and the district failed him. It was clear cut. But, mother had moved him all over in an attempt to get him educated and she lied about her address. Game over. Kid loses.
 Later, I encountered one of the attorneys involved in the case. At the beginning of an IEP meeting, an attorney was boasting about his newborn daughter. The pictures were, of course, adorable. After the IEP meeting was over, he loudly, and in a nasty, provocative tone said, âHey, no hard feelings about XXXX.â I lost it.
 I told him, âYou think you did well? You dumped another poor, black kid out onto the street with no hope of ever getting a job. In sixteen years, whatâs to keep him from putting a gun to your new baby girlâs head and taking her car?â He came over the table after me and had to be restrained. The truth hurts, doesnât it?
Weâre not paying enough attention to the gifted kids. We make a dangerous assumption that âtheyâll always do okay.â They donât. Working with the prison population taught me that many a bright kid goes astray when theyâre not challenged. Just because theyâre smart, doesnât mean theyâll be successful. They need to be taught how to channel their gifts into success. We need to invest in the creative and innovative kids in our schools.
School districts wonât admit that they donât know what to do to help a kid. This one is self-explanatory, isnât it?
What do we do now that we have this huge bureaucracy with its entrenched personnel and âunhealthyâ organizational moral code? I have some ideas:
We have to start at both ends. We need to put vocational/trade training programs into place immediately for those high schoolers who are struggling academically and who see themselves with a future in a trade. Weâll always need plumbers, electricians, mechanics and builders.
At the kindergarten/preschool end, having parents complete a basic developmental history that hits the âhigh pointsâ of a childâs beginning will help determine if they are vulnerable for disabilities. By second grade, every child should have been assessed to get baseline data.
Each school should be characterized by the following:
1. Every classroom has a maximum of twenty students with a full-time, fully credentialed teacher, and full-time aide with at least some teacher training. Itâs likely we wonât need special education or even non-public schools if we reshape how we deliver services.
2. Teachers with specialized training should have unlimited opportunity to conduct remediation for those students who need it. After all, if they donât have the basic skills to access the curriculum, are students going to benefit from being in the classroom?
3. Community and school-based resources should be available, freely, to teachers, counselors, school psychologists, and nurses. They should not have to get permission to speak with experts.
4. Each school psychologist should have no more than two elementary schools or one middle school or one high school. May I tell you that my first year in a local school district, I had seven schools, including a middle school and a high school? The younger the kids, the more attention they need. Itâs about prevention versus intervention. Intervention is very expensive and not just in dollars. Give the psychologist a fighting chance to make a difference.
5. Each school psychologist should have easy access to the kinds of test instruments they want to use. They should have access to the test publishersâ catalogs to learn about the kinds of tests that are available. I bought a test and was using it at a public school when I was the psychologist. I was called in and âwritten upâ for using the test because, as the special education director told me, âIf we find a problem, we have to do something about it.â Well, golly gee, isnât that the POINT?
6. School psychologists should have an actual office away from the busy-ness of the rest of the school to conduct testing. It should be a comfortable atmosphere that is not cold, hard, and scary. Kids should want to go there.
I like the idea of assessment centers that are open on the weekends. Students could have a choice as to when and where they are evaluated in order to achieve valid results.
7. Experts should be brought into the schools to offer in-service about various disabilities and conditions in order to help teachers and others find the best ways to support children with special needs.
8. Twice a month, the team involved in evaluating, teaching and tracking a childâs progress needs to be given unencumbered time to sit together and focus on this one child.
9. Schools should not close at three and over the weekends, extended holidays and summers. We are losing out on a valuable resource in our communities. They should be open after school for trade education, literacy and enrichment (learning another language or English), help with homework, parent education and social opportunities. See the article âWhat to do about Baltimoreâ (4-30-15) at drclaudia.net.
10. Schools need to draw on the resources around them for those institutions (if available) that offer training from the following: teacher, speech and language, occupational therapists and those seeking to work with the pediatric population in terms of mental, social and behavioral health. Also, schools should draw on the senior population to provide a wealth of helpful partners in the classroom.
Earlier, I spoke about the âthieving and viciousâ nature of school districts when it comes to special education kids and their families. I believe that I have covered the âthievingâ part extensively. Let me add a bit about the âviciousâ part. These are my personal experiences. I observed them myself. I was involved in them.
> After I opened my practice, I had my first IEP meeting at a local school. The district failed to conduct a language evaluation even though they had a signed assessment plan. After the meeting, the school psychologist asked to speak to me. We went to his office and he told me that if I âdidnât play ball with the districtâ that heâd see to it that I was ârun out of town.â
> A new special education director was hired at a school district. She called me at home to tell me that she was hired to âput me out of business.â I was so excited. I responded that I hoped her district would do such a great job that, I would have no families coming to me from them.
> Families were told that I did not have a license to practice.
> Families were also told that the district would not work with them if I conducted an evaluation.
> In an act of frustration and an attempt at intimidation, I suspect, a school district attorney threw her glasses and a book at me in a meeting.
> A psychologist hired by the district to conduct an assessment told me, in front of the IEP team, which included the parents, that I was âtoo stupid to understand his results.â Funny enough, neither did the school districtâs attorney. The case was settled.
> Teachers were told not to complete rating scales and feedback forms that I asked them to complete. This was a violation of the parentsâ right to fully participate in their childâs assessment because I was their proxy for this element of the evaluation.
> Observations were âsuddenly cancelledâ for no reason once I arrived at the school.
> During a fair hearing, the school districtâs attorney swore at me while I was testifying. He also threw my report at me and exclaimed, âI know why you write such big reports. Youâre trying to protect yourself from a lawsuit.â I quickly responded, âWell, if I wanted to do a half-baked job (not exactly the phrase I used), Iâd be a school psychologist for your district!â And, the wars go onâŚ
> Districts refused to allow me to observe.
> Shortly before I closed my practice, a guidance counselor explained to me that she shredded the rating scales that the teacher had already completed. Her explanation was that the scales were not appropriate for the teacher to complete. In actuality, the rating scales were the teachersâ versions and were designed for teachers. They destroyed my professional property.
> One of motherâs I represented, who was a mild-mannered and very patient woman, was threatened with a restraining order if she kept trying to schedule meetings with her childâs teacher.
> Another mother who I represented, who was extremely active as a volunteer in her childâs classroom, was apparently advocating âtoo muchâ and was not invited to the volunteer luncheon at the end of the school year. There were a variety of similar rebukes to her and some right in front of me.
> When I took off work for two months to study for an exam, several of my colleagues called me to see if I âwas doing better.â I learned some of the startling rumors that were being spread by school district personnel regarding my absence. It was no surprise since, from time-to-time, throughout my 23 years in private practice, rumors were spread about my husband and also my son. I learned about these rumors from my families and colleagues.
It was clear to me that school districtsâ terrorism extended to anyone who might threaten their existence.
My father would say to us kids, âDonât just stand there, do something!â He was right. Looking at the fact that we are experiencing astronomical levels of teacher burnout, we have to do a lot of things differently. At this point, weâre losing 40%-50% of teachers in their first years of teaching. Kids are dropping out in record numbers and these are the statistics you donât hear about because data isnât being collected.
NOBODY is asking those who work in the field about solutions. Itâs all about the âupper crust,â the âelite,â the âinsidersâ and letâs face it, they must not know much because look at the shape we are in.
We have a multitude of organizations that are âsupposedâ to be helping kids, but they, too, are bureaucracies who do not provide direct support. They seem to be in the fundraising and research business. Again, self-perpetuating and self-serving.
I say itâs time we have a Parentâs March. Heaven knows, weâve got enough evidence to support our concerns. We will continue to have more drug use, more riots, more mass casualty shootings, more murder, more unwanted pregnancies, more prisoners and prisons, more wasted potential, more stress, more health issues and less life satisfaction if we do nothing. If we are not bold and committed, it will be âbusiness as usualâ and the bureaucracy is saved once again.
America has great music; however, with our current educational system, not everybody gets a chance to dance.
Letâs get this revolution started.
Assessment Plan for Elementary Students Suspected of Learning Disabilities
Intelligence
Wechsler Intelligence Scale for Children-5th Edition (WISC-5)
Leiter International Performance Scale-3rd Edition
Achievement
Woodcock-Johnson III Diagnostic Reading Battery
Gray Oral Reading Tests-5th Edition
Gray Silent Reading Tests
Tests of Reading Comprehension Test-4th Edition
Key Math-III Diagnostic Inventory
Test of Written Language-4th Edition
Woodcock-Johnson Tests of Achievement-4th Edition
Reading subtests:
Reading Recall
Mathematics subtests:
Calculation
Number Matrices
Written Language subtests:
Spelling
Writing Samples
Editing
Spelling of Sounds
Academic Knowledge:
Science
Social Studies
Humanities
Processing
Test of Memory and Learning-2nd Edition
Rey Complex Figure and Recognition Trial
Conners Rating Scales-3rd Edition/Long Form completed by
teachers, parents and student, if appropriate
Woodcock-Johnson Tests of Achievement-4th Edition/Form A
Fluency subtests:
Sentence Reading Fluency
Word Reading Fluency
Math Facts Fluency
Sentence Writing Fluency
Behavior Rating Inventory of Executive Functioning-2nd Edition completed by parents, teachers and student, if appropriate
Social-Emotional Functioning[2]
Behavior Assessment System for Children-3nd Edition completed by parents, teachers and students, if appropriate
Clinical Interview
Additional Data
âBlindâ classroom observations in structured and unstructured settings
Developmental History
Review of Records
Intake Interview
Feedback with student; feedback with parents
If I suspect language processing disorders, I will also administer a Test of Listening Comprehension-2nd Edition and if autism is suspected, I administer the Test of Problem-Solving-3rd Edition, the Vineland Adaptive Behavior Scales-2nd Edition (Parent Interview Edition), Social Responsiveness Scale-2nd as well as the Autism Diagnostic Observation Schedule-2nd Edition.
I also have individual tests that measure auditory and visual processing and a wide variety of timed tests, which help me to determine a studentâs ability to produce work in a reasonable time frame.
Understand that I have $35,000 worth of test materials and scoring software from which I can choose and I have the luxury of administering as many tests as I feel are necessary to pursue any clinical hypotheses. Luxury, indeed.
Reprinted from
WHITTIER JOURNAL OF CHILD AND FAMILY ADVOCACY [Vol. 16:1]
Dr. Claudia McCulloch
About Dr. Claudia:
My initial inspiration to become a psychologist who evaluated children, teens and young adults with exceptionalities came when I started teaching in a small Montessori school that accepted kids who were rejected by public schools because they had Down Syndrome, ADHD and dyslexia. It was 1975 and I had no idea what my ultimate professional goal was, but I knew it would unfold and I would know it when I saw it.
 I went on to earn a Master’s Degree in Guidance and Counseling. Well, that was part of the goal, but that degree got me one step closer when I began working with emotionally disturbed children in a housing project in Philadelphia. In that setting, the goal was clarified. I met a woman, Sybil Masters, who conducted evaluations on my students and she came back to me with such amazing information. She was a school psychologist.
 I was accepted into the School Psychology doctoral program at Temple University where I first earned a Master’s Degree and then, the Ph.D. I worked in schools as a school psychologist. When the politics, incompetence, downright fraud, intimidation of parents, teachers and school psychologists, was too much to bear, I knew I couldn’t go on in that position, especially when I was told to lie about test results because “we have too many kids in special education”.
 I went into private practice where my only goal was to determine exactly what was going on with kids, craft a plan to remediate the problems and then, to take the fight to the school districts (and others) to outline where they failed to evaluate all areas of suspected disability and to provide FAPE (Free and Appropriate Public Education).Â
 For 25 years, I fought all of the fights and now, I host a 3-hour weekday talk radio show answering your questions about your children’s education, development and behavior as well as questions about your own lives and the people who impact you including your friends, neighbors, co-workers and boss.
 Find me at DrClaudia.net. The show is live streamed on Facebook every weekday from 11 to 2 Central time. Check out the Parenting Pointers which are 60-second features and the several thousand blog posts!
 â Claudia Rodgers McCulloch, Ph.D. Licensed Psychologist, Licensed Educational Psychologist. Current host of âThe Dr. Claudia Show-All Things Familyâ radio show. She can be reached at drclaudiamcculloch@gmail.com.
Facebook page: https://www.facebook.com/DrClaudiaMcCulloch/
[1] Ashly McGlone, Special Ed Case Costs Approach $1M, THE SAN DIEGO UNION TRIBUNE (August 12, 2014), http://www.sandiegouniontribune.com/news/watchdog/sdut-solana-beachspecial-ed-case-legal-fees-2014aug12-htmlstory.html
[2] cursorily assessed if there are no concerns.
I read this and I really thought I was reading a snapshot of my childâs life! Iâm a dyslexic mother who has went up against the entire school district against all odds to get my dyslexic son the proper intervention he needs. Child complaint, due process, settlement, OCR, Pete Wrightâs class, self education, many many many nights of reading everything I can to understand how to use the laws to get what my child needs, IEP meetings, RED meetings, advocacy calls, lawyer meetings, private testing, more private testing, 2-3 jobs on top of my main job, 2 years of saving money etc…..thatâs a small look into what I have done for my son so he doesnât have to live or struggle as I have because I canât spell great and I struggle to read. I 100% agree with what was wrote and I thank you for writing the ugly truth about our schools. When will more people start talking about this ugly truth and shine light on this epidemic in our schools?
I can attest to this. I’m ready to march. My son will join me. He and I have lived this horror story called special education. It cost me $16,000 just to get the school to finally give my son an IEP. Meanwhile, they illegally put him on shortened school days for several months, saying he had to earn coming to school by fixing *himself*. They reported normal attendance to the state while they had him on 3-hour days. They did not document these modified days. My son continued to decline with them. He was suicidal for years, falling behind, being labeled a monster for existing while disabled. His public school treats autism and mental illness like character flaws, like personal choices. They treat these kids like they’re just bad or faking it. They’ve weaponized their powers against me; I’m one of the few parents that have stood up to them. They refuse to give me all his records; they’ve defied due process discovery of those records, and they are being allowed to get away with that. What are they hiding?
I pulled him out two years ago and placed him in a private school that provides the supports and services he needs. Within months, he turned around. By the end of the first year, he was thriving. He just keeps improving. His future is finally bright. But I’m raiding my 401K to pay for it. The ALJ tried to dismiss my case before we had a chance to go to court. We won our appeal, but the ALJ refuses to comply with the reverse and remand. Where are my due process rights? I think the ALJ is not impartial. The entire system is designed to allow schools to abuse and neglect disabled kids, especially autistic kids.
I’m ready to march. When and where? I’m a few hours drive from DC.
The public school experience you describe is horrific, but, sadly, not uncommon. Glad to hear the private school has helped. That is an increasingly true experience.
As for your due process rights, you should consult with a local lawyer licensed in your state. You can find one at COPAA http://www.copaa.org. The first question is where did you win the appeal? Federal court? The state DOE? [Are you in a two-tier state?] It is my opinion that a court reviewing a hearing officer / ALJ’s decision does not have legal authority to ‘reverse and remand’ back to the administrative agency. IDEA says that the reviewing court has the power to award and implement its own remedy (see 20 U.S.C. 1415(g) and (i)(2)). But your state may have its own enforcement powers (to enforce an award), so that is why you need a local lawyer to understand those rights. Good luck to you.
I have a lawyer already. I’m in North Carolina. We are a two-tier system. We are required to appeal to the state board of education. The SRO reversed and remanded. Yet another instance of forcing already strapped parents to pay out of their pockets to resolve a dispute between government agencies. I can show you what the SRO wrote to support the decision, if you are interested. Currently, we tolled the case so we could mediate without further clownery. But if that falls through, it’s back to the appeals process.
In a two-tier state, that is the proper procedure. I’m also glad to hear you have an attorney. If you don’t get satisfaction from the ALJ or the system, I would contact the U.S. Department of Education Office for Civil Rights and explain the situation to them. They would be very interested in hearing how your state is resolving (or not resolving) these disputes.
Hello. I am going through a similar case. Please email me at angie_1922 @ yahoo .com
This infuriated me. I was threatened with a restraining order because I asked to observe my sonâs class, once, because they were calling me every day and telling me how bad he was. I just wanted to see with my own eyes the behaviors they claimed he was exhibiting. They said I would be a distraction, to stand outside the door, and look in a window. I told them I wasnât doing anymore case conferences because I wasnât a true member of the team. I told them to just send the papers home for me to sign because thatâs all they wanted anyway. They threatened me with truancy. I thought I had served my mandatory prison sentence for being born years ago. Guess not. We homeschool now.
We need a voice as parents, our children need a voice. Education needs to change.
I’m ready to march!
Thank you!! Oh my gosh, I have made many of these rants myself. I am an SLP in private practice and I specialize in literacy. I assess in the same manner you assess, subtest by subtest. I am also a mom of a child with a few learning needs that were recently denied as ” significant.” Not only that a report was withheld from me. The recommendations of his assessment were not passed on to highschool unbeknownst to us and led to a major problem with a bad teacher this year.
Again, thank you for this validation and honesty!!
I really appreciate this article and would love to speak with the author. I am in Texas going through a horrendous law suit that the district has filed against me. Iâve won the due process that was filed against me and now the district is appealing. It is a nightmare. We have to put a stop to the abuse of our children and our families.
You nailed it 100% and I am ready to march on with you.
Tennessee mother of a child with Autism ADHD and Disorder of written expression. I am also diagnosed with Autism /ADHD and my special interest is special education law and my childâs diagnosis relating to his education. I am currently drafting a due process complaint on my own after a year of just trying to get an evaluation (completed 6 months after requested) and IEP in place (currently delayed in draft stage for unknown reason). Ive faced gaslighting, blatant disregard for the law and retaliatory type behavior against my son anytime I questioned their decisions. My paper trail is there I track and document everything itâs my Aspie super power but the school just creates their own full of lies. Iâm not an unreasonable person I just want then to follow the law because if not whatâs the point of it being there if they are not expected to follow it.
I know Iâm not the only family in this area thatâs facing these difficulties and the resources we have to fight the schools to do the right thing are nonexistent. I was mistreated in school and I refuse to allow my son to be so I will continue without help for now but reading things like this help greatly so THANK YOU
*Recently fired the attorney I hired to help us with our case after her second threat quit because I refuse to blindly follow an agreement she made with the other attorney when I wasnât present. She refused to make any moves that might lead to due process explaining to me that it could be worse other families have it a lot worse.
Your article hit home so hard. I just told my husband to tell the director of Special Education (who only called us because I got in an e-mail war with the school diagnostician) to tell her I am never attending another ARD meeting as long as I live because of the hostile way we were treated last time after the school district violated my Autistic/ADHD/Language Disorder/Hyperlexic sonâs IEP for two years straight in two different schools. The diagnosticians in both schools did not enforce the IEP,and the standard class teachers in these schools in these two referenced years did not want to follow my sonâs IEP either, and tried to do everything possible to get him out of the class. The district will hire extra administrators in special Ed, but will never hire any extra necessary paraprofessionals to assist my child in the standard classroom, so they just did not allow him to go to his classes for almost two years. The Life Skills teacher at the current school finally figured out the scheme, and we were able to put a stop to it. The school said it was âunfortunate,â but no one was at fault who was still working at that particular school. WHAT???!!! Then, the ARD meetings were hostile and offensive on their end, and we realized all we parents were there for was to simply sign papers to cover the schoolâs responsibility. Well, I had had enough when I was asked to have my son reevaluated for autism and ADHD three days before the ARD. I was told the last meeting I had been informed of this. That meeting was so traumatizing for me (I am also autistic and have ADHD) and I just sat in a daze in an autistic shut down during the meeting. The âwe told you about this in Decemberâ comment from the diagnostician set me off. The e-mail war then ensued. I told her she was the primary reason (at this school) my sonâs IEP was violated, and she kept shifting the blame to former diagnostician. Anywayâit got ugly, and I refuse to ever attend another ARD. I will just make sure the standard class teachers are working with him, and the rest of the special Ed team can keep doing their pointless bureaucratic nonsense. But I am out. My son was only two points shy of average on his math MAP test last week; I know if he been in standard classes his whole life, he would be above average. Special education ruined his chances.